Chodím inak a vítam vás vo svete osobnej asistencie.

I walk differently...

Welcome to the world of personal assistance

About me

Personal assistance is a personal matter, and reaching out to someone whom we know nothing about can be a barrier for some. In the following lines, I will, therefore, try to write something about myself and assistance at mine so that you can get a little idea of what it would mean for you.

Introduction

My name is Daniela, or Dani, as people usually call me. I am a Slovak who moved to Prague 21 years ago. If I didn't happen to travel, I spent most of the following years in the Czech Republic, but also in Slovakia and Sweden. As a PhD student at Charles University in the field of social anthropology (interconnected with disability studies and gender studies, which I'm a master of), I have been researching personal assistance from a user's perspective for several years. In my personal life, I am an activist and a woman in an electric wheelchair with a continuous need of personal assistance. Due to a diagnosis that prevents me from strengthening my muscles beyond a minimal level, I cannot, for example, raise my arm, even though at first glance, when sitting, it may seem like there's nothing so serious. I don't have any family who could assist me, which is why I seek help in the form of personal assistance.

As I need round-the-clock assistance, I have people around me 24 hours a day - they rotate after the number of hours that suits them (approximately 4-6 hours during the day or the whole night). If longer services would suit you, we would have to agree on that and adjust the tasks accordingly (use more lifting equipment, etc.). The principle is that these people have to cover 24 hours a day, 7 days a week. Assistance is usually provided at my apartment or outside as needed, in Czech Prague - Hostivař (mostly during the school year) or in the Trebišov district, Slovakia, (mostly during major holidays and summer months).

About assistance

About the tasks

About the tasks

Since I have weak hands, I need help with everything related to survival: dressing, preparing meal, hygiene (such as showering), going out, household chores like cleaning or laundry, transfers and positioning, i.e., sitting me in the right position, putting me to bed, or turning me to the other side by night... Basically, everything that an able-bodied person does without thinking about it too much. A personal assistant serves as my hands and legs. They do for me what I would like to do myself if I could but, due to physical limitations, I cannot. That's what I need to survive in my condition.

It's not usually about having someone to talk to or spend time with - I manage that quite well. It's mainly about survival and, therefore, help to survive. The mentioned tasks around me are learned gradually so the first shifts are relatively simple. Night shifts involve the assistant sleeping but, approximately once a night, they come to turn me to the other side. They also have their phone on in case of urgent need.

About the assistance team

About the assistance team

The team of my personal assistants is international. It usually consists of about 25 people per month (before the pandemic, it was 40), from all over the world. There shouldn't be a language barrier. In addition to Slovak and Czech, I can communicate in English (C1), Russian (B2), and Swedish (B2). Shifts of assistance always overlap within a time range of approximately 15 minutes, so it's essential to arrive on time for each shift to make effective use of the time for mutual assistance.

About time

About time

I prefer long-term cooperatio and offer flexible time commitments. You decide how often and for how long you want to assist each time (after mutual agreement according to the availability in the assistance calendar). You do this according to your own possibilities and willingness to come - I don't force anyone to come but it's fair to inform me about your availability or unavailability so that I can make arrangements. The chosen time (both the length of the visit and the date) can vary each time (the assistance calendar is also transferred to the website where you can see your shifts).

Basic guidelines suggest assisting me at least 1-2 times a month and up to 3-4 times a week. Shifts typically last a minimum of 4 hours and can extend up to 12 hours, with daytime shifts usually being 4-6 hours and nighttime shifts around 10-12 hours. Of course, it also depends on how we match and what my needs are. It is good if the first services take place during the day so that we have a chance to get to know each other a bit.

About health precautions

About health precautions

I try to adhere to hygiene principles so assistance washes their hands when they arrive at my apartment, before working with food and, most importantly, they shouldn't come to me if they are sick with flu etc. as struggling with illness is much more difficult for me than for able-bodied people. Due to the nature of the work, we have no other restrictions but if someone doesn't feel well or has been in touch with a sick person, they must inform me in advance because I am in a high-risk group.

About compensation

About compensation

I provide a sum of 140 CZK / hour or 5.83 € / hour for your assistance. It's not a huge amount but since I live completely alone without the help of relatives and need round the-clock assistance, paying for 21 hours a day, 7 days a week (I don't pay for 3 hours at night), it is already a considerable amount of money for me and I simply can't afford to pay more. Some people even come to assist as volunteers so that they help me to manage this way. Whether you opt for paid work or volunteer service, the responsibilities and tasks are the same.

Every month, I have to wait for the money based on the reports submitted to the Slovak social body. Therefore, I will send the reward to your account by the 10th of the following month for your work in the previous month (for example, I will send the money for April by the 10th of May). Please, respect it and do not ask me to pay the sum earlier.

About the first meeting

About the first meeting

I am, of course, a private person, not an institution. And since it's my privacy which I allow a new person to enter, I have a habit of meeting with every interested individual before we start working together. This first visit is not binding and lasts approximately an hour and a half, maximum 2 hours. We will talk about mutual expectations and I will show you some basic things, tasks, and equipment with my experienced assistant. If the training goes well and your interest persists, we can start cooperating.

If I haven't deterred you with all of this, you can write to me when you might have time for the first meeting. I will compare your possibilities with mine and whether there will be any experienced assistant speaking a language you understand at that time. I would be pleased if you could tell me as much as possible about yourself, who you are, your age, occupation, experience, motivation, lifestyle, biorhythms, what tasks you like or dislike, and so on, in advance. If you have any other questions, please don't hesitate to contact me. I look forward to working together!

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